Emily Rapp: Writers With Lots of Achievement, Lost Legs And Children

Physical limitations have never made Emily discouraged. Emily even managed to take courses at major universities with full scholarships, ranging from Harvard University, Saint Olaf College, Trinity College, Dublin, to the University of Texas at Austin. Various awards he's received and he has ever worked in a number of major media such as The Los Angeles Times and The Sun. Beyond that, she is still actively share knowledge and writing techniques he mastered in universities and various training. A professor of creative writing and literature at the university of art and design of Santa Fe, New Mexico, even women born 1974 handheld.

Everything looks so perfect. However, it seems that an incident had made him feel very upset, weakness, and despair. When it is, right January 10, 2011, Emily and her life suddenly changed drastically husband. Their only son, Ronan, who was sentenced to 9 months old suffering from a genetic disorder, especially the handling of a deadly disease cure has not been found: Tay Sachs.

Formation of fat occurs in the cell, particularly the brain and nerve cells, which affects the physical development of people with seizures, blindness, paralysis, and finally death. Sounds familiar, it's rare genetic disorder. Babies suffering from this deadly disease was initially looks healthy at birth, but symptoms of the disease will be seen before the age of 3 to 6 months to start weak motor skills. Subsequently, at the age of 6 to 10 months of lost motor function and condition of the patient rapidly becoming worse. Increasingly made her more desperate, a child with Tay Sachs confirmed only last a maximum of up to 5 years old.

Emily tried to make Ronan functioning motor skills, figuring out all the things associated with Tay-Sachs and how to maximize Ronan's life before he was really gone. However, the reality is not much that can be done. Emily had her hopes dashed see Ronan grow up like his father who is good to play puzzle or as a culinary adventurer himself.

The only thing it can do is pray, something I've never done a very long time. "If you take Tay-Sachs from Ronan, I will do anything you ask-just say the word," said Emily, "I prayed as I had as a young Theologian in divinity school, and I was so overwhelmed, so out of my body, so fully in the dream of disbelief, that I actually believed for a moment that it might work. "Emily Hope, with the back to pray a miracle could happen.

Dear all again Emily did not match expectations. Ronan managed to survive until the age of 3 years with the condition unable to move, hear, let alone talk. Head should be kept sustained because he has no power at all. At one point, Emily Ronan feel disadvantaged, as well as herself and her husband. However, of all the negative feelings, she also felt a new strength, a new lesson, "The experience of loving Ronan has transformed me. I now know that the immense fear of losing a friend, a parent, a child, or a spouse is, in fact, evidence of how much we value that person. "

Emily managed to pluck something from the story, then write in detail into a book, The Still Point of the Turning World. Through her writing, she wanted to convey that anyone can not realize someone is so mean in his life to feel the loss. Emily was feeling lucky because it could reveal his love for Ronan and provide the best for her. Emily realized early that could at any time lose Ronan, so every second with Ronan became invaluable time for him.

Now, Emily has really abandoned Ronan who went in mid-February. However, the only child that left one thing for Emily, timeless life lessons. Which is also a relic Ronan to us all about the meaning of the presence of the people around us, realize how meaningful they are, and what could we do to express our feelings, at any time before they go, like Ronan.